Finding a cure is our one true hope for Livi
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Finding a cure is our one true hope for Livi ~
Alternating Hemiplegia of Childhood is a lifelong disorder…
that will only change when a cure is found.
Join our Fundraising Campaign!
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Genetic Medicines & more
We are testing all therapeutic leads in humanized mouse models, worm models, and patient-derived cells to validate the best drug candidate for our children.
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Clinical Trials
With the help of our clinicians and medical writers, we are preparing for any FDA interactions or clinical trials with drug candidates following their validation in mouse models.
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Manufacturing the Drug
We are raising money to produce CMC and GMP quality drug products for our clinical trials and beyond with best-in-class manufacturing partners.
Olivia has good weeks and bad weeks that are strung together by her astonishing ability to find joy in every moment in her life.
Olivia’s Story
Our Mission
All the strength that we have for her as parents manifests from the love she shows us and the joy that she brings to our lives. As we have seen by the endless strength of other families experiencing this, we know that Olivia made us her parents because she needed strength and determination to provide her the path to a cure for this disorder.
“We will not stop until our little girl’s smile never has to leave her face again.”
— Olivia’s Loving Parents - Brian and Christy Roy